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Genetic Disorders (25) - order by Newest
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�
Forum for Patients with Myotonic Dystrophy 2
Description:
A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
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52
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by 1 users
Added:
1/8/2005
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�
Ideas
Description:
A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
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47
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Added:
12/24/2004
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Lafora body disease research talk
Description:
This is a discussion group about lafora body disease.
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223
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by 1 users
Added:
12/9/2004
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Online Genetic Syndrome Support Groups
Description:
Sites are listed alphabetically by disease/condition.
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51
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Added:
11/24/2004
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Oto-Palatal-Digital Syndrome Family Resource Network
Description:
Resources, articles, support and general information on the rare disorder, Oto-Palatal-Digital Syndrome.
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54
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11/9/2004
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Parents of Polydactyly and Webbed Children
Description:
A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others
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92
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5.0
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by 1 users
Added:
10/25/2004
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Peter's Anomaly Support Group
Description:
An online support group for people dealing with Peter's Anomaly.
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57
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Added:
10/11/2004
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Philadelphia, PA., Internet Support For Invisible/Hidden Disabilities
Description:
The Philadelphia, PA., Internetsupport For invisible/hidden disabilities.
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165
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9/29/2004
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S.O.F.T.
Description:
Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
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64
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Added:
8/31/2004
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Thomas Scott Davidson
Description:
This is a memorial website for Thomas Scott Davidson who died from Anencephaly.
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52
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5.0
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by 1 users
Added:
8/15/2004
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Total Links:
25
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